Neurodiverse & Rare Disease Events
CT-RDAC Rare Disease Day Forum
Date: March 16, 2026
Time: 9:00 am - 12:00 pm
Location: Legislative Office Building, 300 Capitol Ave. Hartford
* No registration is required. Please contact CT-RDAC (connecticutrare@gmail.com) with questions.
BioCT/JAX Rare Disease Forum
Date: March 17, 2026
Time: 9:00 am - 12:00 pm
Location: The Jackson Laboratory for Genomic Medicine, 10 Discovery Drive, Farmington CT
* Registration required. The event is free for patients and legislators.
UConn Rare Disease Event
Date: April 7, 2026
Time: 12:00 pm - 3:00 pm
Location: UConn School of Pharmacy, 69 North Eagleville Rd. Unit 3092, Storrs, CT 06269 (Parking: North Garage, located at 103 North Eagleville Road, Storrs, CT 06269)
* Registration via email to ashley.jeong@uconn.edu is required.
Denise D'Ascenzo Walk to Fight Rare Disease
Date: April 25, 2026
Schedule:
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9:00 am: Packet Pick-up & Day-of Registration
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9:10 am: Kids Activities Begin
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10:00 am: 2 Mile & 1 Mile Walks Start
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10:30 am: Post-walk snacks & Pizza Truck!
Location: Quinnipiac University 275 Mt. Carmel Ave, Hamden, CT 06518
* Registration required.